Dear Unsealers,

I am a 36 year old woman and wife to my 39 year old husband. My husband was diagnosed with primary progressive MS in 2013 the year we met and also got married (when you know you know!) At first the only visible sign from the outside looking at him was his gait and poor balance, he always appeared to be drunk when you watched him walk. From his perspective, he could no longer see out of his right eye, which became permanent, he was retaining urine which was not safe, he was having a hard time doing his job which involved using his hands and fine tools due to neuropathy like symptoms. Now he uses a cane and a walker and takes medication for spasms in his legs. Now he has also bein diagnosed with major neurocognitive disorder which is a basic open term for dementia. I am his caregiver with the help of a home health aid 12 hours a week. Neither of us expected to be in this position when we met in January of 2013 and married that September. It progressed rather fast and more than likely won’t stop. My husband has a great attitude though which is amazing for him, and so hard for me sometimes, I’ll admit. Sometimes I want to talk about everything and cry, but he already pushed it out and doesn’t think about it like I do somehow. He’s teaching me in his own way how to be more optimistic and less stressed over things you can’t control. I have my own illnesses, mental illnesses, that flare so to speak when I am stressed and it’s helpful to be with such a strong person. Sometimes I don’t know if I have it in me to be a wife and a caregiver to the same person at such a young age; then I think about how we’re helping each other out in different ways I just forget to see it that way, the way it is.

Dear, Unsealers:

It’s the first day of the month of May.

April seemed to go by quickly. As one does when they participated in National Poetry Writing Month.

The calendar resets for the next thirty-one days. Spring is in full bloom.

With the opening day of the month being a Wednesday, I welcome the month by way of haiku, an imperfect one…

As the fifth month begins
Thirty one new days arrive
A welcome, to May!

In life, we say I love you,
Many won’t mean what they say.
In poetry, we say I love and then we take you somewhere further than outer space.

I say I love you to many in many different ways,
Love is too complicated then dares to never make sense.

There are so many ways to love someone only real love could understand the rest.

I love her as my Nurturer,
An artist who molded the most beautiful clay,
The momma bear whose cubs never starved a day.

I love him as my Foundation,
The cement of my soul when the tides of life wash the rest of me away,
The tesla of my heart he made me the light on your darkest days.

I love him as my own heart,
The fragile passion none could ever corrupt or dethrone,
The hero to my sidekick for as long as he lives I’ll never let him truly be alone,
He looks out for me, I’m his almost clone.

I love her as the earth loves the sky,
Sometimes she is my shade,
Sometimes she brings the rain,
Sometimes she may be the storm,
The mother of the artist,
She is the vision that the masterpiece was made for.

I love him as my mentor,
The flame of my candle when lost in the dark,
The script to the play when I never had a chance to practice my part,
The man behind the blueprint to a better-built heart.

I love them as my brothers,
A bond close to kin,
Should they never question my loyalty,
We save each other from our sins.

I love them as my sisters,
A love to fill a void of the things never had,
A love to protect and be vulnerable when things are good or bad.

I love them as family,
The kindest faces the ones we have yet to meet,
The only love that times has yet to defeat.
An impossible connection that defies the very ground beneath your feet.

I love her as the moon
Her love is my sun
No earth in sight,
A connection stronger than the deadliest spider web none has ever spun.

I love her as her escape
No interest in whether she deserves peace,
I’ll be her chance to just run away,
If she goes too far or finds herself lost,
I’ll love her as her return
For things that need her most could never recover from such loss.

I love them as their comfort,
I place they can be safe,
I’ll be their pillar until they need a pillow,
I’ll be both for them on my best days,
I’ll also be their discomfort because growth won’t happen any other way.

As for myself, my love is a Thorny mirror
For the things that I feel are a reflection of what I serve.
A taste-blind chef with intentions of shaking the world.
I love myself in a place of solitude as the one who hates to love alone.
I’ve been so far from where I was I forgot that I’ve passed where I wanted to go.
That’s what happens when aren’t looking ahead.
Now I just want to be bonded with the dream I’ve always had love for a gamble on a shooting star.
Memories of the longest chapter I’ve ever written so far.
Love for the one who always gets a page no matter what chapter I’m on.

Today is the first day of the rest of my life,
Therefore, every next one I’m in-is a new chapter.
Every morning, I wake up, God’s mercies to me are new-
So, with on my heart, His daily touch- I am able to prove…
That I love Him, that I am thankful-that He is the only One able
To mold and strengthen my life, because it’s so easily breakable.

Just one more day to prove-how much for others I will lose.
And know that my tears for others are real,
Because always for the next person, I’m to lift up-
I’ll lose if they can gain, the Master of the universe to me explains…
That He was there always, and is there forever-
He has placed His Word inside of me. as the greatest Treasure!

A time to be married to my beautiful wife,
A time to live with my kids,
Time and again to prove my life is (for others) to give!
A time to know, a time of notion
A time to grow in the fact connection,
That helping others build, is in-tact protection.

A chapter to heal with the faithful “Unsealed”
Understanding (unworthily) I have been blessed for real!
whether I look back, or pierce through ahead
Life is still permanently on track, my life is hid-my life is dead!
But that’s a good thing…Because it’s the old life that’s dead!

It makes me smile as I cry…
Knowing all the while-my soul will never die!
Rather in eternity-with Christ is life forever,
And best of all, while down here on this earth…
Is to show my schizophrenia has no worth-
Over the grace of God-that I cling to endeavor!

As chance and chapter to prove purity-is more dominant than deceit
With the bowels of the new heart and spirit-God has freely given me!!!

…Amen

4-24-24

Give me peaches like burning clouds.

The vermillion mass of blankets reflects off the Vermilion Great Lakes.

Like the raging sorrow and disbelief that my heart floats upon.

Intensity blooms in the latitude as I see you for the last time.

A weeping willow as I cry under the tree.

Eyes drooping with rainstorms.

Nothing more seems to amaze me.

As the pull of your spirits linger.

Sunshine beams fearlessly through the hurricane of Venus like clouds.

“Be as thy presence is gracious and kind” something you would tell me when my mind tornadoes.

Mind flustered with dazzling memories.

Lightning over me with your nourishing energy that conveys everywhere I drift on Earth.

Our compressed bond brings me back to resilience.

I will always levitate on the sweet joy that you left behind.

Today I have decided to tell my story. I suffer from bipolar. I was diagnosed with the mental disorder over 20 years ago. I have been through alot. It has been a real problem most of my life.
It was triggered after I had my second child. It was a nightmare 😔. I ended up being hospitalized several times over the course of twenty years. I will do my best to explain the horror of it all. I remember having one episode after another. Each episode was very exhausting and dramatic. I would block out a lot of the different personalities and triggers of emotional dynamics. It was so 😫 tiring.
I will try to explain one of my episodes to give you an idea of it all. Well, it all begins with not taking my medication. It slowly turns into a horror movie. I hear voices and act out several different personalities in my mind. I begin to have spells of crying dramatically having thoughts of despair. I was on edge and going down a bottomless pit of not wanting to be here anymore 😪. Yet, in most circumstances I didn’t want to kill myself because an angelic voice told me, ” no” don’t do it! I say, “okay” most times. Smh.
In these drastic times I have family who did help me like my mother. And that was important and fortunate because at these times it is good to have positive support systems in your life.
In most cases my family would call 911 and have a rescue squad come get me. In this case, I can’t stop crying. I wanted to leave! I wanted to go away! My family would say that I was going to the hospital. My main support is my mother. She was always there for me.
Once the ambulance 🚑 arrived I felt like I was in a horrible movie. This has happened to me several times over the years. Yet on this particular case the ENT would come in from the ambulance slowly one my one. They see I’m distraught and incoherent. I don’t know who I was at this point. I’m yelling for no reason and crying for no reason. I can’t understand what is going on. The police also came in…and it got worse. They felt like I would hurt myself or others and so one officer threatened to taze me. I said please don’t..please give me some water to drink. They did.
They slowly calmed me down and then my casemanager came in to also help out.
They asked her several questions to understand why I was like this. She told them that I was bipolar. I am so sick at this point. I have felt supernatural powers around me. I would say, ” I see angels”. They weren’t really visible but a feeling of goodness and calming voices.
So this contributes and adds to my psychotic behavior 🤔. That is what I felt.
I want to tell you the experience of being INSIDE THE AMBULANCE 🚑. Once I get inside the ambulance I felt like i was being ported to an experimental place. I was scared!!!!!This particular personality in me was very informative. I was talking a great deal like I was literally someone else.
One ENT said that he had never seen anything like this before. I finally got to the emergency room. Once there I begin, to yell and bring attention to myself. The police 🚔 officers were staring at me. A guard was placed at the entrance of my room door. I was being watched for over 24 hours. After a while a psychiatric doctor told me I would be admitted to a room in the hospital.
Now, I was on the floor of the psychiatric unit. Once I was in my own room I was in a bed. In some cases I was given medication to help relax me and I would sleep for hours.
So this was a particular bipolar experience. The next day, after being monitored I had to learn and come to appreciate little things again. Showering 🚿, brushing my teeth, wearing a hospital gown, and being served my breakfast lunch and dinner. This was a safe place.
Once I stayed a couple of weeks I was let go. I had a team of supporters around to help me. I had a case worker, a psychiatrist, and medical doctor coming in to see me. I felt much better. This was going to begin to be a part of my life for over 20 years. It is hard. But I will say I’m currently doing ok. So remember you are not alone. Be positive. Find good supporters in your circumstances. I hope this helps someone. Thank you for hearing my story. I am beating bipolar.

People all around have lost their sight
In return has made this world loose its light
Hate and darkness are spread
while people try to hide it all with meds
Instead of opening their eyes they become more blind
which makes the light harder to find
People are becoming more like animals losing sight of humanity
Which is destroying the future you see
We all secretly want the same thing
to truly be loved & not shown pain
We forget to be the person we needed when we were younger
especially when that darkness hit with that Hungers
People can always be the change in this world & save humanity
Even if it just starts with you and little Ol me
Someone must finally open their eyes
To see past all the masks, disguises, & lies
Just as easy as hate can spread
Love & Kindness could be instead
One match can bring light to the dark
The dark cannot overpower the spark
Unless you give that power away
Nobody can make or break your day
Working together for the greater good
Has been somehow misunderstood
It is time we all open our hearts & quit being sheep
Show love instead & let the evil sow what it reap

The knight elevates the princess
tightening his grasp midair
while they are lost in the brown waves.
Shifting the thread of hair behind
to gain a surpass of what the wave has inside—
the knight elevates the princess.
Giddying as the knight’s veins come through
the heat in the room leaves them breathless:
while they are lost in the brown waves.
The beats sync
taking the space away
the knight elevates the princess.
The grin grows uncontrollably
the palms leaving a trace:
while they are lost in the brown waves.
Continuing to go steady
as they snuggle close.
The knight elevates the princess
while they are lost in the brown waves.

Once again//I lay awake,
Light passes through dark stained glass skin,
A mirror, a chisel, a key,
The door behind swings open,
And why should I not have that which I desire?
I trace her steps.
//
My amethyst heart pounds violently as I maneuver through corridors of crystal,
Glassy tears break into marble pieces/my feet don’t bleed from shards,
I stare down at the marble Staircase in the Glass Castle,
Statuesque like meter in the frame,
And it was beautiful.
//
Never more/I fall asleep
The ugly lustre of my body devours the room,
A reflection, a thought, an emotion,
I close the door behind by me,
I know not what I desire when my body desires my mind,
I return to the room.

At my worst, it’s felt like I’ve been swimming through my molasses. The storm has passed, yet fog remained. Echoes blurred the vision of an aimless vagabond.

I cannot see; still, I love my eyes