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  • Sherry Noble shared a letter in the Group logo of Mental HealthMental Health group 2 weeks ago

    Learning positivity

    Dear Unsealers,

    I am a 36 year old woman and wife to my 39 year old husband. My husband was diagnosed with primary progressive MS in 2013 the year we met and also got married (when you know you know!) At first the only visible sign from the outside looking at him was his gait and poor balance, he always appeared to be drunk when you watched him walk. From his perspective, he could no longer see out of his right eye, which became permanent, he was retaining urine which was not safe, he was having a hard time doing his job which involved using his hands and fine tools due to neuropathy like symptoms. Now he uses a cane and a walker and takes medication for spasms in his legs. Now he has also bein diagnosed with major neurocognitive disorder which is a basic open term for dementia. I am his caregiver with the help of a home health aid 12 hours a week. Neither of us expected to be in this position when we met in January of 2013 and married that September. It progressed rather fast and more than likely won’t stop. My husband has a great attitude though which is amazing for him, and so hard for me sometimes, I’ll admit. Sometimes I want to talk about everything and cry, but he already pushed it out and doesn’t think about it like I do somehow. He’s teaching me in his own way how to be more optimistic and less stressed over things you can’t control. I have my own illnesses, mental illnesses, that flare so to speak when I am stressed and it’s helpful to be with such a strong person. Sometimes I don’t know if I have it in me to be a wife and a caregiver to the same person at such a young age; then I think about how we’re helping each other out in different ways I just forget to see it that way, the way it is.

    Sherry Noble

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    • Sherry,
      I just wanted you to know your letter about your husband has encouraged me to always look on the bright side of things, and except people for who they are (including conditions). You do have it in you to continue taking care of him, and your honest transparency letter proves just that. Thanks for being a good friend.

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    • Your husband sounds like an amazing human! And you sound pretty amazing and loving and wonderful yourself. May each day bring you both as much joy as humanly possible. Sending a hug your way. <3 Lauren

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