Aiša, this response LITERALLY makes me TEAR UP!!! I am glad with these words, “There is a responsibility
To encourage others to see
We all have a “disability” captured what you were feeling!! YOUR WORDS CAPTURED what I NEEDED to hear about this piece and for MYSELF!! A SENTENCE goes a LONG WAY!! Keep BEING YOU!!
Today is YOUR day to receive gifts; I hope these letters are ones that you can open at any present moment, and feel LOVED AND APPRECIATED!
With that being said, and I say this with NO EXAGGERATION, THE UNSEALED IS, and will ALWAYS BE, one of the BEST PRESENTS EVER given to ME (even if I purchased it myself)🤣
As you probably know, words, phrases, etc, mean the world to me!
The IMPACT that this phrase:
“TURN YOUR SECRETS INTO SUPERPOWERS – Lauren Brill has on me is one that is on top of the standings for me!
Through YOUR STORY AND the creation of THE UNSEALED, YOU HAVE taught me not only to talk with pride about my difference to literary WALK with PRIDE, and do NOT let ANYONE step on your toes, PREVENTING you to go after your dreams and GOALS!
Aww Jake, this is so sweet. I am so glad The Unsealed has had such a positive impact on you! You have so much greatness inside of you. And you have every reason to walk with your head held high. YOU ARE AMAZING. Never stop pursuing your dreams. They will happen. I am grateful for you and your friendship. Love you. <3 Lauren!
What am I grateful for?
Often I feel shameful for not feeling more grateful for my disability
I am grateful to the Higher Power
For instilling the motivation and strength
Recognizing how I can use my disability
Sometimes I make myself feel dizzy
Trying to figure out why me
he chose to be looked at differently
I never think I will fully love my disability
Because I do wish my disability wasn’t something you can see
But when I look at my life now
I am trying to see something new
The good in why he chose me
Being one of the people whose disability you can see
So you see
There is a responsibility
To encourage others to see
We all have a “disability”
I don’t want self-pity
I just want people to understand that
“Your disability” just maybe
Your greatest ability
Thank you higher power
And everyone that supports me!
Aiša, this response LITERALLY makes me TEAR UP!!! I am glad with these words, “There is a responsibility
To encourage others to see
We all have a “disability” captured what you were feeling!! YOUR WORDS CAPTURED what I NEEDED to hear about this piece and for MYSELF!! A SENTENCE goes a LONG WAY!! Keep BEING YOU!!
Jake!!!!! This piece is fantastic! Your best piece yet. Embrace yourself. You inspire so many. You are thoughtful and have such a wonderful spirit. You are perfect the way you are! Thank you for sharing and thank you for being part of our family <3 Lauren
AND ESPECIALLY using YOUR WORDS!!! YOU TRULY HAVE A GIFT!! I am HUMBLED AND HONORED to be a PAL of YOURS! I took a screenshot of your response, so it’s there for me not just when I NEED IT, BUT TO START MY DAY!! This is MY COFFEE!!!
Loving yourself is not easy
Thinking about it makes me dizzy.
My head spirals like the wind
I think about what could have been
Would my love for myself be different if I had not let society’s opinion take me on this tailspin?
I wish I were a dog
Not remembering their last internal sin.
Giving myself love should not be difficult
But my happiness does not come from within!
Relying on others for my happiness will never allow me to feel that “win”
All it does is cause me to throw my accomplishments into the trash bin
However, it’s never too late to recycle
Recognizing where I have been.
Self-love is hard
But life is like a sport
Always giving you a chance to get that comeback win
Before I throw my accomplishments in the bin
Not remembering where I have been
I certainly will remember this poem and its satisfaction.
I love myself because I know I can win!
Jake, your poem reflects the internal struggle of finding self-love and happiness. The metaphorical references and vivid imagery paint a powerful picture of your journey. Remember that self-love is a process, and it’s never too late to start embracing yourself. Your determination to overcome obstacles and find that “comeback win” is inspiring.…read more
We’ve all been there, trying to UNSEAL a bottle, and we just can NOT.
After a million tries, we take a break and glance at our hands, only to see them bright red from our work, which, until this point, hasn’t borne fruit.
We might even see a blister and wash our hands (reluctantly) because we know that once that hand even has the slightest bit of soap, it will be the most painful “bee sting” we’ve had in our life – until the next time it happens.
Taking a deep breath, we jargon back to that YouTube video we watched, showing us how to breathe correctly and might utter an expletive to vocalize how upset we are that we don’t practice this routine more.
Going back to the bottle, we FINALLY UNSEAL that cap. Hearing that pop sound gives a sense of relief and accomplishment equivalent to successfully climbing up Mount Everest.
Opening up that bottle and hearing the cap pop off is the equivalent of taking that one extra step to get what you want in life!
If we do NOT assume that step, life, itself, will ALWAYS have a cap and make us REGRT that the bottle was NEVER UNSEALED!
This grand plan we have in our heads to write a book, become an Adaptive Clothing Model, public speak, etc, are things we want to do, but if we want to do them, we HAVE to TAKE ACTION!!
This action is NOT meant to be taken ALONE and reach “Mount Everest” RIGHT AWAY,; it’s having JOY EVERY TIME WE get CLOSER to UNSEALING that Bottle!!!
I want to say I remember the exact date. I do not; however, that does not take the meaning, luster, or any other adjective to describe the importance of this day away.
I was a sophomore in college and still was having trouble finding a friend who truly made me feel comfortable talking about my cerebral Palsy. I felt that until I explained it, I would not have that authentic friendship I so desired.
Anyway, I believe it was a gloomy day in September or October at Mitchell College in New London, CT.
I remember it like it was yesterday —- which is saying something because the story starts with me on the phone with my mom — it probably was the 1000 time I talked to her that day. Still, this time was unlike the rest: she called, and I did not moan and groan about how much work I had to do; instead, she asked me what I was doing.
It was probably four p.m., and I was lying in bed sleeping to mask my anxiety about making friends. I said, “Nothing.” “Well, what can you do?” She asked. Then, in a voice of trepidation, I said:
“The basketball team is holding a clinic for Special Olympics CT.
I did not want to go because — though I would be volunteering — I did not want to be associated with individuals whose disabilities are apparen, as I told myself that I did not have friends because of the way I walk.
After the event, everyone was given Pizza. I took mine and scarfed it down because I probably had not eaten all day due to my anxiety.
While eating as fast as I could, I choked, and this player on the school team offered me his drink. I eventually stopped choking, and we sat on the gym steps for hours, talking about life and basketball.
After explaining to him how my Cerebral affects me, he said, “Do me a favor; we are not going to refer to it as a disability; we are going to refer to it as an OPPORTUNITY!
I must have looked at him as if a bear was attacking me. Still, about six years later, I am grateful that I have learned that I have an OPPORTUNITY to impact people using my disability POSITIVELY.
Aww, Jake, I love this piece. Your friend is right. It is an opportunity and NOT a disability. What beautiful and true wisdom. Never lose sight of how your uniqueness is a chance to inspire the world. Thank you for sharing. <3Lauren
Jake, this message was /is well received. I too have often hid the interabled parts of Me so that no one would notice. It is very tiring to say the least. I have had to turn down many many many events because of my anxiety and the fact I felt shamed by what others would think or if they could tell I was triggered. Perservance is what I am…read more
@giesantana, I can NOT describe how much the following sentence means to me!!! “Thank you for your refreshing outlook. And showcasing your ABILITY!! 🙂”
I thank YOU for reminding me that disability can define your inability OR the fact that you get STRENGTH from it!! YOU, MY friend, FIGURED OUT the question of WHAT TO DO!! KEEP DOING IT!! and rem…read more
Before I go back in time, it’s crucial to recognize your mind was not fully developed yet.
They say things happen for a reason, but…
“If you sit on the bench, you sit on the bench.” It is your fault that I did.
I wish you would have pushed yourself to lift one more “weight” by going to that party. You did not… it’s your fault.
You wanted to tell that girl you liked her. You did not… it’s your fault.
These milestones that I did not hit, yes… it’s your fault!
You did not know any better, but people that I trust tell me it will come at the right time.
I think I am in the right hands – that is me joking about how I can’t use my right hand😂
Anyway, Thank you for forcing me to realize that the bench is too hot, making me move my butt. Because of you, life won’t have as many buts as it once did.
Your inaction is forcing me to take action, and not say “BUT if I did this!” I’m hitting the field now.
Thank you for making me see the GREEN in the grass. Now, I am slowly appreciating the muddy trail you took me on.
As I hit the “field,” from now on, I’m going for two all the time!
Jake – I am so glad your teenage self taught/motivated your current self to chase all of your dreams and live life with a sense of fearlessness and urgency. You are amazing, and I am grateful you are part of our community. <3 Lauren
Jake, this is very clever and creative, and also very true. Your wisdom is truly incredible. You view the world from a unique, deep, and powerful lens. Thank you for sharing and thank you for being a part of our family. <3 Lauren
Whoa!! Quite an interesting concept if “eye” I do see so myself!! Thank you for reminding Me that the change will always start within! I am wishing you so well 🙂
Today is the 10-year anniversary of which you PHYSICALLY passed.
Whenever I talk about you it’s ALWAYS in the PRESENT TENSE because I KNOW that you are ALWAYS guiding me down the hill , “looking down” on me, BUT that is the EXACT OPPOSITE. You look UP to me because of the thing that I fear people look down on me for.
As I go into the work force, I worry that no matter how sharply I dress, my Wobble will force me to immediately turn around – hey that rhymes😂
I know that you are there with me, telling me,“You are the one that needs to walk that frame of mind out the door!” I slowly have by writing about my disability.
Losing you physically will never become clear to me; it is clear as day that you are with me by this telling story.
Several months ago – maybe a year, I went out with Aunt Debbie and started telling her my struggles to feed myself the confidence I needed. On her suggest, I started following this on Instagram.
One day, while waiting for the bus to go skiing, a favorite activity of ours, I scrolled through my account and saw she was being interviewed on this platform, The Unsealed.
The platform turned out to be run by a woman named LAUREN, a former Sports Journalist, who created it to allow people such as myself, to tell their stories.
I JOINED and every since, I’ve been UNSEALING stories about my disability and life AND you bet THIS is GOING UP THEIR!
Please consider donating ANY AMOUNT of $$ to help Mikaela’s mission and the reason she IS an OT, SEEING the ABILITY in people!
The link is on my Instagram and Facebook bio!
Jake, your heartfelt letter to Mikaela showcases the deep connection and love you have for her. Your determination to honor her memory by sharing your own struggles and advocating for others is inspiring. Keep shining your light and spreading awareness.
At one point, I did not know if I would need a helmet to protect me from physically breaking a bone of yours. That is not my only bone to pick with you; it’s hard to swallow that everyday activities are challenging because of you: shoes, buttoning shirts, opening cans, etc., are taxing, but the younger me did not care about any of that: what I missed the most was sports.
Kids are taught to move their bodies from a very young age. Thus sports are encouraged. Signup sheets with a multitude of options are (sometimes)literally thrown their way.
Some are tossed in the garbage; some are run over to a parent or guardian as fast as Usain Bolt. Either way, as one of the only physically disabled kids in the school (that I could see), most people had a choice as to what they wanted to do with that sheet. I didn’t.
Before I even got the paper, my hopes and dreams of being on a team were crushed, like most tennis serves at Wimbledon, fast.
My feet actually did touch the grass of a baseball field, but only with the help of a “ball person” — yes, that is a play-on-words for a person who retrieves the tennis ball after it is hit into the net during a tournament.
I can’t participate like everyone else because My reactions are such I might get hit with the ball if I did not catch it.
Remember The saying “a picture tells more than 1000 words” (made famous by Henrik Ibsen, a Norwegian playwright)? When I was a kid, it told the whole darn story.
My reality was different than my classmates. My dreams, not. Like many people in my age group at the time, I wanted to be a professional athlete.
I still remember thinking a kid on my little league team would make the majors. Not only that, thinking he was Shohei Ohtani — arguably the greatest player in baseball ever.
This kid seemed to be as tall as the Empire State Building. The chances are not that high that he did make it (although my brain is pulling on every cell to convince me otherwise.)
The chances of me looking up if he did: pretty high! (insert laughing emoji)
Everyone and anyway who stepped foot on any field or court lived out a dream I could only imagine; however, one day, my physical therapist (PT) and I were practicing my walking and running speed.
I broke a personal record (I think it was 30 feet in 10 seconds) enough to convince my mom and PT that I should try my feet on the track team.
I practiced for about three days, running around the whole track once. My mom saw I was exhausted, and after the second day, she told my coach to take it easy on me. I probably did not run more than 30 feet in practice once after and quit.
So, I used the body of this article to moan and grown about my very own. How about I turn the eggs sunny side up — hopefully, that frown will turn upside down!
Now at days, I look at things from “the other shoe.”
Sports are about the team and the people who celebrate with you. No game-winning hit can compare to “lacing them up with my team, “trying to play the cards I was dealt and “tying the loose ends” that cerebral palsy hands me every day, and when I “lace them up,” one by one, we have won the Super Bowl.
Jake, I think being an athlete and competing is about making the most of your given abilities, and pushing yourself, and growing and getting better. You have done just that. You have so many reasons to be proud of yourself and your body,. Thank you for sharing and thank you for being such an important part of our unsealed family. <3 Lauren
Thank you for the kind words, Naeem! Taking the time to read my work and write such a personal, thoughtful comment (as you often do countless times for everyone) means the world to me! Continue to encourage others!
Ah mate thank you, and you’re welcome. It’s the least I could do. Thanks again for writing such an inspiring and motivational story here on The Unsealed. Keep em comin
The Unsealed definitely serves that purpose for me. I hope it does for others as well. The group certainly is a nonjudgmental space to UNSEAL the “drink” that is emotion!
This is so true. You’re so right about The Unsealed and I’m glad you’re loving this community and the opportunity to share with others and inspire with your words.
This is a ramp; at first, I took a picture to post on my social media platform to credit Buffalo Wild Wings for having this ‘assistant’ for people like myself who need an alternative to reach their destination. Don’t get me wrong; I appreciate not having to worry I might have ‘egg on my face’ before I enter the establishment or my cheeks being red, not because I had spicy wings, but because I fell.
Having two letters attached to my name is hard. These letters are CP. If I wanted to take the ‘steps’ — in my case, the longer route, I would say cerebral palsy, but my parents call me Jake instead of Jacob for a reason, right? Yes, my jokes are making this longer.
As I thought about posting this picture to social media, I pondered, “How could I post this phenomenal demonstration of universal design and make it universally understood?”
As I muddled for an answer, my subconscious blatantly interjected, “Your fudging kidding me, Jake? You know better; this is about your valid desire and craving for others to comprehend your sometimes paralyzing negative thoughts when ‘boxed’ or thinking you are ‘boxed’ because of two letters, CP.
So…after all of that stewing over, I realized the ramp served as a reminder, “I do not only need a ramp for physical assistance; I also need it for mental assistance! Fortunately, I do, and I hope you all do too! Keep unsealing your stories; this UNSEALED family has you!!
Aww Jake this is so sweet. I hope The Unsealed can be that “ramp” for you and others, showing everyone we care, and helping everyone to get through the difficult moments and emotions in their lives. Thank you so much for sharing. <3Lauren
The Unsealed definitely serves that purpose for me. I hope it does for others as well. The group certainly is a nonjudgmental space to UNSEAL the “drink” that is emotion!
This is so true. You’re so right about The Unsealed and I’m glad you’re loving this community and the opportunity to share with others and inspire with your words.
Thank you, Karen @kmimsrice for your thoughtful words of reflection and thank you for your condolence.
YOUR BEAUTIFUL response can serve as a reminder, not just in the tough moments, BUT ALL THE TIME, “to REMEMBER ALL the JOY that was brought into your life from THIS ONE PERSON”
Thank you for the beautiful words, @mavisjohnson! I appreciate YOU taking the time to write such a HARTWARMING message! Using words such as GOLDEN HEART,
AND Bravery are some of the reasons why she leaves a GREAT LEGACY!
Changing the world is a daunting task; all the dust and debris that we can not unsee. Crime and killings are almost as common as finding a dime on the street and the amount of homeless people is not a sight to see. These are the poor aspects of the place that we live in, but don’t have to live in a world that we aren’t proud to see! How do we change it when we all see things differently?
No matter what side of the winding world you are on, time is distributing equally. There are 24 hrs in a day, and we all choose to use it in our unique way. if every gun was substituted with a thought of graditude, every crime substituted with a compliment and for everyone without a home a place to stay, hey, who’s to say that tomorrow can’t be a world changing day?
Kale, I wished it were all as simple as you so wonderfully wrote in your letter. Exchanging the weapons for an act of gratitude and the homelessness situation under control would be ideal. I too agree EVEVRYONE should have a decent place to lay their heads. Great poem!
What you speak of is a utopian that I hope one day we can experience. I agree that every deserves a decent place to lay their head and a simple compliment can change someone’s day.
Jake this is wonderful. I always thought about that too – if one day everyone woke up and said today I am going to change the world, could we make a huge shift in one day? Probably! This is so creatively written and thoughtful. I absolutely love it. Thank you for sharing! <33 Lauren
Karen, I’m glad you are able to give what you did not have the opportunity to receive to your grandchildren! I am sure they are so happy to be able to celebrate with you!
I love it, watering that plant to a New Life. Thank you for responding to my statement and as you’ve stated, every single day you (we’re) getting closer to figuring out all of our abilities through our disabilities. There’s so much we can conquer when we put our minds to it, just as anyone else. Blessing to your future!
You’re so Welcome! And as you’ve stated, disabilities and all, there’s so much we can accomplish and not allow anything to stop us, just like anyone one else. Once we get started, there’s no stopping.