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  • And we are all the better for it....

    Dear Unsealers,
    I remember that day like it was only yesterday. A gut-punch so powerful that I felt the life leave my body. Pain so unbearable that I thought my heart would break into a thousand pieces. It was the day a doctor told me that my son had an incurable rare disease that would rob him of his eyesight. And possibly his life.

    It was a beautiful spring day in May of 2010. My son was only 4 year’s old. Birds were singing their beautiful uplifting melodies. Flowers were blooming with vibrant breathtaking colors of the rainbow. And I, a first time mom, knew then that I would never look at the world the same ever again.

    The doctor did not sugar coat the news. Instead she delivered the devastation with such aloofness that it rolled over my body like a steamroller. “Your son has a rare syndrome called Bardet-Biedl Syndrome (BBS). He will most likely be blind by the time he is a teenager. He may need a kidney transplant due to life threatening kidney failure. He will never be able to have children of his own. There is no cure.”

    After hearing the word “blind”, I shut completely down, as if I had heard a cancer diagnosis. I heard not another word. I was in a dark tunnel and could not escape, my husband holding me up like a concrete wall.

    We went home and grieved. Grieved the loss of the future we had hoped for our son. Grieved the loss of him ever attending college and having a career. Grieving the loss of him ever having a wife and family of his own to love him. Grieving the loss of the possibility of grandchildren.

    At that time, there were no Facebook pages for rare syndromes. There were no family support groups to turn to. We were all alone in this desert trying to help our son with a rare disease that affects only about 1 in 150,000 people.

    We were lost in every sense of the word.

    In the beginning, we only told a few close family and friends about the diagnosis. We needed time and space to digest and decipher the news ourselves. After all, the hopes and dreams we had for our son were now shattered like a mirror into a million pieces.

    But the day came that we realized that our hopes and dreams were just that, ours. Not my son’s. The dream of him becoming a doctor or dentist or college football player like his dad were all in our master plan. Not his.

    It was then that we realized that God had another plan, to use our son, and us through him, to reach out to the world about rare diseases and autism. To help bring awareness and acceptance to those who do not have a voice.

    I started with a blog and Facebook page called “Hanging 11 with David,” to share our journey with Bardet- Biedl Syndrome and autism. I started writing stories about the good, the bad, and the ugly of day to day life with a child with special needs. I started speaking with civic groups, law enforcement officers, politicians in Washington DC, medical meetings and conferences. Basically to anyone who would listen to our story. I started moderating a telephone support group to be a sounding board for parents of children with BBS. That telephone support group now reaches all continents.

    And then the grief lessened. Each day, a little by little, we saw sunlight beaming into that dark tunnel we had found ourselves in.
    Somedays I hardly recognize the people we are today. Our son is thriving. He is truly a happy and loving soul. Sure, he still has bad days. Days where we all just want to crawl underneath the covers and scream, “Why him? Why us? But those days are few and far between now.

    I often say that God knew that my son needed us and that is why He sent him to our family. But God also knew that we needed my son just as much. He has taught us to slow down and cherish the smallest things in life, like the simplest of milestones.

    He has shown us our true friends and family. He has shown us what is truly important in life, and the things that are not.
    No, it is not the life that we had imagined and dreamed of. But in many ways, this life of ours is even better than we could have imagined.

    Yes, we took the road less traveled, as it was the only road presented to our family. But we never looked back. We will never see the world the same again. And we are all the better for it….

    Maxie McGlohon, MSN, RN, FNP-BC, LNC, Rare Disease Advocate, Author of Hanging 11 with David

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    • This is such a well-written story! I want to commend you for the hook you used at the beginning. After only a few sentences, you immediately pulled the reader in and left me wanting more. The literary devices you used helped paint a vivid picture and helped me imagine your words in my head. I love the way you turned an arduous path into something…read more

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      • Thank you so much! I just write from the heart. My son is my greatest joy. And even though he is semi verbal, he is telling his story through us and changing the world for the better.

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    • This is a beautiful story, and your son sounds like an amazing person with a wonderful life filled with love. Thank you for sharing.<3 Lauren

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      • Thank you for your kind words. I hope that his story will inspire others and bring awareness and acceptance to all people who live with challenges. I hope it will help others feel seen and less isolated. I hope his story gives hope to parents facing unthinkable heartbreak. Having our story published would be life changing.

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  • The Way To Grow

    The Way to Grow

    By Breanna Asada

    About a year ago, on March 12th, I was at my best friend’s 21st birthday party. And my biggest worry was a job I interviewed for. “It’s been a few weeks and still no call,” I told one of my friends.

    By the next month over; my best friend and I were going to have a night out. She ended up bailing on me for work. I was mad at the time; I didn’t text her back. I wonder now if I had back then, maybe I would have known what could have happened to her. The week or so after that; I ended the friendship with the girl I was at odds with. I’ve never done that before, but then again I’ve never felt freer. A month and a half later, I got the job.

    Three weeks later in July is when I realized that I hadn’t heard from my best friend and couldn’t get a hold of her. None of my friends could either; not even when I asked the girl I was at odds with. I started posting video’s trying to see if anyone could find my best friend.

    August second was the day I got my license and my Grandpa caught a bad cough. I was scared that he had finally got Covid. One week later I had gotten my license and he was diagnosed with cancer. And on August 15th was when my friend and I realized that my best friend had ghosted us.

    September. Grandpa had started treatment. It took a toll on his body. He used to love cooking, but once Kemo started; that’s when we started to get takeout. October 14th is when my Dad and I got into a screaming match. I can’t tell you why; I don’t remember. What I do remember is the long drive I took afterwards. It still sounds so Grown-up of me. Riding to the next city over then down the strip.

    October 18th, I was going to visit my Grandpa; at this point, he had been asleep for a few days straight now. This was my last chance to see him. I was in my car driving out of my neighborhood with a small vase I had made for him… I couldn’t do it.

    I turned my car around and stayed home. I asked my Dad; who was already heading there, to take the vase with him… He forgot.

    That night, around two a.m. I awoke to a shiver that covered my body and a loud ringing in my ear. That’s when I knew he was dead. That morning on October 19th, I stayed in bed as long as I could knowing that as soon as I stepped foot out my door, I would see my Dad’s face covered in tears, and he would tell me to sit and talk for a bit. I couldn’t wait any longer; I had to pee. So, I open my door and…

    No one was home. I knew then too but my mind wanted to deny it. Even when both of my parents came home.

    I had one last therapy session before my insurance was up. I felt guilty as to what I told my therapist; I told her of how I felt so relieved now that he was gone. How the stress and worry disappeared. She told me that people reacted to death differently and that it is normal to feel how I felt.

    November. Sometimes, when I was alone; I would feel the need to hold something tightly to my chest. Even when I did; it didn’t help. I think that was the last time I left a voicemail for my ex best friend; at some point, in that month; I was angry and let her voicemail have it.

    January. I was told that my Grandpa’s dying wish was for us to take my Brother to Disney World. I wasn’t really excited about this trip. But I kept wondering why he wanted us there; it had to be more than just Disney World. I am not a fan of a change in scenery. I soon realized that I was scared of the change.

    That trip made me realized that growing wasn’t the cause of my Grandpa death. It wasn’t me getting a job or my license that started this chain reaction of events. My Grandpa would have still died this year even if my friend group didn’t end. That’s when I realized that I always stopped myself from growing; thinking I could outrun time but in reality; this is the way to grow. Rather time or myself; the clock is always ticking.

    Before I realized it, a year had passed.

    A year since the party.

    March 12th.

    Happy Birthday.

    Breanna Asada

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    • I really like the structure of this piece. I can see the montage of the months passing by in my head. Change is the only constant in life, but even still, I’m a bit scared of it too. It’s super beautiful for you to take an event people see as sad and find a way to make yourself better instead. Thank you for sharing 🙂

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    • I am so sorry for your loss. This is a beautiful piece. Grief is so tough. I lost my Grandpa 25 years ago, and I still think about him a lot. I still feel like he is close to me. He is watching me. Crazy story. My Grandpa told me rain was good luck. So every time it rained after he died, I felt my Grandpa’s presence. It rained on my high school…read more

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  • I do not do

    2 months before walking down the aisle

    2 years after saying “yes I will marry you”

    12 years after saying “yes, I’ll be your girlfriend”

    I said “We can’t get married”

    I loved you more than I loved myself
    I thought that you loved me that way too
    I grieved hard the next year believing you didn’t love me
    I realized you loved me the way you knew how.
    You loved how I treated you, how I made you feel, how I helped you grow.
    I thought that was love.

    2 weeks spent packing up the apartment we lived in together

    2 hours spent moving boxes with my best friend and dad

    2 eyes I had never seen before while you watched as I left.

    I reflected and admitted that I didn’t know who I was;
    tried new things and spent time with new friends,
    started up old things and spent time with old friends.
    I spent time by myself, with my old self and new, learning who I was.

    3 weeks after moving out you crossed a set boundary

    3 times I had to practice staying strong and upholding it

    3 months you didn’t pay rent on lease you chose to keep and refuse to take my name off

    I grieved, I cried.
    I felt stupid and ashamed
    I felt taken advantage of and small
    You didn’t get what you wanted. I didn’t give in.

    4 months into 29 years of life

    4 months into a new relationship

    12 months after saying “we can’t get married”

    I love myself more than anything else
    I am loved the way I deserve to be loved
    I’ve grieved that I have accepted less. I’ve learned that all of me is loveable.
    I’ve grieved that I learned that it was okay to accept less.

    2 times a month I see a therapist; I’m learning to trust myself

    2 months from now I will have lived on my own in a new city for a year.

    12 years from now I don’t know where I’ll be but I will forever be grateful for the things I learned along the way.

    I said “we can’t get married” and I changed my world.

    Crystal Frances

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    • CONGRATULATIONS. So many people settle and do the “easy” thing, but what’s easy in the moment is a recipe for a hard life of accepting half of what you deserve. Congratulations for wanting better and taking it. I really like the way you set this piece up. 2 months, 2 years, 12 years or 3 weeks, 3 times, 3 months are all great ways to put this…read more

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    • I broke off an engagement when I was 24. I am not even sure why. He was great and treated me well, but I think I might not have been ready for all that. And that’s ok. I realized I had to trust and honor my intuition. Congrats on loving yourself more. Our relationship with ourselves is the most important relationship of our lives. <3 Lauren

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  • Building a Family by the Book

    We first saw her picture in a book,
    In the days before everything was online.
    She was a face among many
    On one of a hundred plus pages in a kid’s catalog.
    Not a book for kids to enjoy,
    Filled with enticing toys and games.
    But a catalog of kids,
    Children that needed a home,
    And we casually leafed through it like a store’s advertisement.
    I don’t recall why we stopped on her picture,
    But we did and made plans to meet her.
    We felt the stares when we arrived at her foster home.
    We were the minority in her neighborhood.
    Her foster home was busy
    With children running throughout,
    Seemingly too many for the house to contain without bursting.
    We planned to take her away for the day,
    And she willingly joined a family of strangers
    For her first trip to the grand museum on the city’s lakeshore.
    I doubt she appreciated many of the exhibits,
    But she loved the chicken nuggets after
    As she fell asleep after her big outing.
    We brought her back to her foster home,
    And we agreed to discuss a second visit
    To determine if she was a good fit for our family.
    At the time, it seemed a practical plan.
    Looking back, knowing what we know now,
    It seems ludicrous that there was ever any doubt.
    We said our good-byes and headed out,
    But the noise made us look back.
    We saw her inside the house,
    Pounding on the door and crying.
    She was almost two
    And didn’t yet speak,
    But she sure could scream.
    And scream she did,
    At us … for us … to take her with us.
    There was nothing we could do
    Except continue home
    And call the DCFS office.
    The next visit was quickly planned.
    It would be our last.
    We would bring her with us
    To her new forever home.
    The next time she left was when
    She went off to college,
    A vulnerable teen.
    No longer the child without hair
    Who walked with a limp and didn’t speak,
    But still vulnerable.
    She would return to us as a strong adult,
    A beautiful dancer and learned scholar.
    But most importantly to us,
    She returned home as our daughter
    Whom we love dearly.

    James Flanigan

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    • I love the way you write! It’s light, it’s wholesome, and there’s this overarching feeling of genuineness in your writing. You found a way to make mundane things beautiful, like the chicken nuggets after or the way she screamed. I really enjoyed listening to your story unfold 🙂

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      • Thanks so much for reading it and your kind words. It definitely is genuine as everything in the piece is as it really happened. Because of that, it was actually quite easy to write.

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    • James, I am in tears. This is such a beautiful story and your daughter is so lucky to have you as a parent. Thank you for sharing such a sweet and wonderful story. <3 Lauren

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      • Thank you for reading, but sorry I made you cry. We are truly the fortunate ones to have her as our daughter. It feels like we were always meant to be family.

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  • Daisy: A letter on Miscarriage

    Dear Daisy,

    I anticipate your stems sprouting from the ground every spring, and I can feel you again. When summer approaches, your petals will showcase their beauty in the sunlight. I will close my eyes and take a deep breath, and for a moment, you are here in my arms. I imagine your bright blue eyes mirroring mine. Your smile is the brightest star in the sky. Your laugh roars, filling the earth with glee as you play with the other neighbor kids in nature. It is easy to get lost in the daydream.

    Before you, I was giving my body away to men who didn’t deserve it. Drowning underneath insecurities and self-loathing, allowing myself to be treated as a piece of property that could be used and abused by men. Convincing myself that I wasn’t worth love, I kept telling myself that this was how I wanted to feel: worthless and nothing.

    My period did not come. I kept telling myself, no, it isn’t possible. I was in denial. Adults have a superpower of lying to themselves, so incredibly powerful that they believe it until they can no longer outrun it. The truth will always rear its head, and it’s heartbreaking.

    That morning in June, I awoke with intense cramps. I convinced my twenty-six-year-old self that my period was coming… three months late. Treating it as a typical day, I went to work. As I was Chatting with my coworkers, one of them being your father, about planning a fun night out, I felt a cramp, and a gush of blood erupted flowing outside of me. I ran to the third stall in the bathroom, and I saw it. I could no longer deny what was happening. I was losing you, Daisy.

    Turning back into a childhood state of mind, I called my mother, and she rushed me to the hospital. Blood was seeping me through like a waterfall. When they came to tell me I was losing you, my heart tore in such a way that I am still unable to put into direct words. I hadn’t even developed the courage to tell your father you were coming; now I would have to say to him you were gone just as quickly as I accepted you were alive.

    He was kind enough, but wasn’t the emotional support I needed then. He didn’t understand why I changed and didn’t want to be a “coworker with benefits anymore.” He got upset with me when I wouldn’t fulfill his desires, even though the doctors told me it wasn’t safe for me to do until I stopped bleeding. I did not want to be an object of his desire anymore.

    I bled from June to August. Part of me didn’t want to stop bleeding because that would mean you were truly gone. I wanted even those parts of you to stay. The day the blood stopped, I put my hand on my empty womb and wept. It was two days past my twenty-seventh birthday.

    I had spent most of my life avoiding any feelings of vulnerability. Losing you was the first time I felt every emotion in my body: sadness, anger, regret, and eventually relief. The truth is, Daisy, I wasn’t ready for you, and I will never know if that could’ve changed in time for your arrival. Granting myself to succumb to my emotions took me from a shell, and I embraced the complete existence of myself as a person and a woman.

    After hours of self-reflection, I realized I was not stuck with anyone. Cutting the ties, I focused on building myself as a strong and confident woman. I promised myself never to give my body away until I could say to myself, “I love you.” Somehow, I got there. I felt the wind hit my face, and you said, “You got this, Mommy.”

    Experiencing a miscarriage has given me unwavering strength to tackle obstacles that dare come my way. I am intelligent, I am kind, I am important. I am grateful for every ounce of pain and emptiness I felt in my body. Never again will I throw my feelings into a drawer and pretend they aren’t there. I can articulate when I am hurting and ask for support from people around me. The experience made me a whole person, not the robot society deems the most acceptable. My strengths and weaknesses make me whole, just the way I am. And Daisy, that is the most freeing feeling anyone can be. Through you, I discovered how to love myself.

    You are the world, Daisy. I never gave you a name. I planted the prettiest seed to remember you, and will continue to bloom for you and me.

    I Love You Always,

    Your Mom

    Kathryn Wilkinson

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    • Wow! my heart just tears reading your pain. I love the symbolism of the Daisy in her name. I love the raw vulnerability.

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    • Awe, this is such a sweet piece. The double entendre was beautifully written, and the rawness of your work makes it very easy to feel connected to you 🙂 This is such a life-changing event to go through, so thank you for having the courage to share <3

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    • I am so sorry for your loss. But what a beautiful way to honor Daisy. I am sure she is proud of her mommy. Thank you for having the courage to share. Miscarriages are super common and not talked about enough. <3 Lauren

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      • Thank you, Lauren, for your sweet message. It is definitely something that is taboo to talk about it. People don’t know what to say. I found writing this very therapeutic and it ended my long writer’s block. Thank you for the prompt for giving me an avenue to let those emotions out.

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  • With great power...

    Today at work, I surprised a fellow associate when I told him that I had been born with cerebral palsy, which had affected my left side since I was a child. He had a surprised look on his face since he could not detect that I had anything wrong, much less a disability. I am a fire safety officer with the security department ata New York City hospital, and my job requires that I be ready to rumble and jump into action at a moment’s notice. But had you seen me when I was 4 years old, you probably would not have thought that I would go that route. In those days, in the middle 60s, my mother had her hands full taking me to the hospital every 3 months to see the doctors at the prestigious Hospital for Joint Diseases on 124th Street in East Harlem. One of the first things we’d do is go over to see Jimmy the cop. Jimmy was a security officer in the hospital, and he always made me feel like a little giant whenever my mom brought me to see him. Then it was on to the doctors where we’d do the same exercises over and over again to see if I needed any special tools to button my shirt or tie my shoe.
    As a result of my condition, I walked with a limp, and I also dragged my left foot behind me. When I was three and a half years old, I was fitted with a metal brace on my leg to alleviate this condition.The brace was attached to the ugliest looking Brown looking brown orthopedic shoe you ever laid eyes on. I was always pleading with my mom to let me wear sneakers like the other kids, but she would just console me that one day soon she’d buy me a pair. Along with this special challenge was the added pressure of being a small kid. But, as I was soon to learn, my challenges did not define the size of my heart and the scope of my mind. Starting in 1967, I was part of the national United Cerebral Palsy telethon held at the Ed Sullivan theater in New York City. I remember the special party events we would attend in those days before and after the late autumn telethon. The Christmas parties were a kid’s dream. Even though it was a lifetime ago, I can still remember my name being called, and walking with my mom down the center aisle to meet Ed Sullivan, who shook my little hand. But nothing could top the candy at these parties. Yep, candy was life for a 4-year-old kid. Everything was larger than life when seen through the eyes of a four-year-old. I still walk by and the glance through the windows of the glass door of the old Ed Sullivan theater on West 54th Street which years later became the setting for the David Letterman show in the early eighties. I remember meeting Edie Gorme and her recently deceased husband Steve Lawrence. Every year they supported the telethon and all the kids. Our moment was when they paraded us on the stage and one of the hostesses would sing her song every year.Look at us we’re walking, look at us we’re talking. I can still hear that voice in my head. But it was in 1968 when something happened that made me see things differently. That summer, my sister and cousin were entered into the Little Miss America Pageant at the Palisades Amusement Park, and my mom put me in a several weeks long sleepover camp for kids with CP. I remember arriving at the camp and seeing all these kids who had it much worse than I did. Many in wheelchairs, and some severely disabled. But they smiled and laughed, and did the best they could in the face of their challenges. The counselors were so friendly, and my first crush was a 20 something year old blonde who I thought had taken a special liking to me. Well, at least that’s what I tell myself nowadays. Then, one day it happened. We were at the pool when she shattered the illusion.She proceeded to unstrap her left leg and hop into the pool. My little four-year-old mind was mortified. But she could really get around in that pool though, I’ll tell you that.
    As I became familiar with all the kids, I tried my best to help when I was able. Helping them in their chairs, or making life easy whenever I could.
    One fine summer day, we were sitting in the group playing our kazoos. There we were, just drooling along to Peter Paul and Mary’s only number one hit song, “Leaving on a Jet Plane”,
    when I spied one of the kids 50 ft away on an embankment, tossing rocks at a tree. I left the group, and limped over to where he was in his wheelchair. As I got closer, I could see that he was throwing stones at a hornets nest. I tried drawing attention to us as to what was going on, but it was too late. As I approached his wheelchair, he let loose with a stone, and struck the nest. Faster than you could say lickety split, we were surrounded by hornets who zeroed in on us, stinging to their hearts content. I struggled with his wheelchair trying to roll it down the grassy hill, but try as I might, I was no match for the grassy hill or the hornets. Help arrived, and we were hurriedly rescued by a couple of counselors and taken to the nurse to be patched up with calamine lotion. But the events of that day stood with me for the rest of my life, because it taught me that with great power comes great responsibility. Yeah, I know it sounds cheesy, but I have always tried to live up to that awareness.The next year, I had my leg operation, and the brace came off. I finally got those sneakers. They were skippy’s, but wore them proudly. All these years later, I became a hospital security officer where I continue to make a difference. I especially like to go up to the young kids that are wheelchair bound or get around with the aid of a walker and give them words of encouragement. I’m no Jimmy the cop, but if you need help escaping a hornets nest, I’m your man.

    Robert Feliciano

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    • I love your story! I love how you started out with this brief yet impactful mention of Jimmy the cop and tied it back in at the end. As I was reading, I was anticipating how you’d bring Jimmy back. This was very full circle and beautiful to read 🙂

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    • Robert, I am crying reading this. This is so inspiring and powerful. I am glad you never let CP hold you back from your career, sneakers, or camp. And as someone who is allergic to bee stings, the fact that you were willing to step in and help that boy means you are a true hero. Thank you for sharing. <3 Lauren

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  • cwoods submitted a contest entry to Group logo of Write a poem or letter to the world about an experience that changed you or your life for the betterWrite a poem or letter to the world about an experience that changed you or your life for the better 1 years, 2 months ago

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    Battled- Tested

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  • Purpose

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  • A Letter to the Girl I Used to Be, to Say Goodbye

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  • tweesna submitted a contest entry to Group logo of Write a poem or letter to the world about an experience that changed you or your life for the betterWrite a poem or letter to the world about an experience that changed you or your life for the better 1 years, 2 months ago

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    Rose, rose

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  • ksopira submitted a contest entry to Group logo of Write a poem or letter to the world about an experience that changed you or your life for the betterWrite a poem or letter to the world about an experience that changed you or your life for the better 1 years, 2 months ago

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    What it’s worth

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  • Coming Home

    I always knew I was different, yet the ability to articulate exactly what I felt eluded me for most of my life, especially the early years. I grew up in the 80’s, pre internet, so I didn’t know there were other people in the world like me. When the internet came about, I learned that I was a crossdresser. Though that didn’t exactly fit me, it was the closest thing I had to an identity.

    As a teenager I would go through a form of conversion therapy which resulted in burying my feminine side and trying to brace hyper masculinity. It was nothing more than a mask that I would wear for the sake of others. For if I could fool them, one day, I could even fool myself. I thought I was rather good at it, yet there were many days and nights she would be just below the surface, screaming to be let out. Every time I would silence her and go about life. The smile on my face was a poor attempt at hiding the sadness in my eyes.

    Decades would go by and with each passing year I marveled that I was somehow still alive. I could never picture a future where I existed, where I had happiness, genuine happiness that persisted in my day-to-day life. I would become depressed over time which led me to one of the most life altering choices I would ever make. Instead of going through the motions and simply existing every day I sought help from a therapist, not just any therapist, but one that also specialized in gender identities, transgender people.

    I would finally have answers to my questions. I finally had the language to define who I was. I wasn’t a boy; I wasn’t a man. I am a woman, a trans woman. What did that mean for me? How can I do this at the age of 41, I asked myself. With my therapist’s guidance I was able to answer these questions, navigate this transition and all the added pressures it would bring on someone that has a family, job, and lives in the bible belt.

    It wasn’t easy by any means. Depression would set in at the knowledge of being different than the rest of the world. Yet I would plug away. I think my most defining moment early in my transition was the loss of a dear friend who was also a trans woman. The pressure got to her, and she took her own life. And I was scared, terrified, because only weeks earlier that was very nearly me.

    My employer had exclusions on gender affirming surgery in the company Healthcare plan, so I was at a loss of how to pay for these surgeries. So, I would keep asking my employer to remove said exclusions. Each year the answer was no. Each year I would send a formal request to corporate and each year I would get a different reason why they wouldn’t remove the exclusions. After 4 years of this I reached out to an attorney for assistance and after a year of back and forth, my employer at the urging of the EEOC removed the exclusions on gender affirming surgery.

    I had my first surgery in November of 2023, a breast augmentation or as the community calls it, top surgery. And my bottom surgery was in March of 2024. You’ll hear people say that gender affirming care is lifesaving. And that’s really a hard concept to grasp unless it’s something you’ve experienced first-hand. I even didn’t fully grasp how life altering it would be until my first surgery. Yes, I had gender dysphoria regarding my body. Yes, there were times I hated my body so much I wanted to hurt myself. Times spent in the shower, in the dark, just crying.

    And then you have corrective surgery. To many, it’s a small thing. A small step. But when your body is foreign to you, when your body has betrayed you and you wake up from that first surgery and see the results of it? I cannot fully describe the amount of joy I felt. Finally, my body was starting to look like it should have all these years. Finally, I felt at home in my body. I started to stand up straighter. The was no longer this unseen weight on my shoulders. Finally,, I was me! I was happy. I am happy! My body was finally mine, not some impostors. More importantly, when I try to imagine what the future looks like, I can see a world where I exist in it. Transitioning, and gender affirming surgeries, gave me another chance at life. I’m both lucky and grateful to have been able to see the world from two sets of eyes.

    Lillith Campos

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    • Lillith, this is so well-written. And good for you for standing up to your job and advocating for yourself and others. I am so happy you were able to pursue what brings you peace and happiness. Sending you love and hugs. Thank you for sharing your story and for being part of The Unsealed family. <3 Lauren

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  • Beauty from Her Ashes

    My former self was fueled by mental illness and trauma. I was a prisoner inside my own mind. I felt burdened and weighed down with life, that life itself was torture. I was always inconvenienced, and everything triggered me. I was wrapped so tight that when I unraveled I would fall completely apart and I’m frantically would gather them all back up. My anger consumed so much of me that everyone had to walk on eggshells in my presence. I was so lost I couldn’t comprehend my left from my right most days. I was a total mess. A lost cause, a mistake and everything else that replayed in my mind that someone else had told me about myself. I couldn’t live with myself, yet I expected others to come make me whole, to protect me and provide for me, to show me I was worth something and that I mattered! Time after time, I bleed all over them until they had to abandon me to save themselves. I struggled daily trying to convince myself this would all be worth it one day. Even though all the fighting to stay alive was not paying off, it only kept getting harder. I kept fighting.
    June 12th of 2022 I received the call that my Mother’s journey had come to an end. Standing outside my mother’s apartment knowing her physical body was lifeless on the other side of that wall and now her story was fully written was bittersweet. Her book had closed, yet for me it was a chapter ending.
    I knew at that moment I had no choice but to live life differently than her, again. My mother and I shared a mental illness diagnosis that was not easy to manage or live with. Her passing was a heartbreaking loss yet also a breath of fresh air. I knew she finally had some peace and rest after all those years of searching for it.
    Her passing fueled a new fire inside of me. I grew a desire to taste happiness. I wanted to know what joy felt like. I needed to feel comfort and gain stability. I finally had the chance to truly heal and this chapter of my life was over. The ending of my mother’s story gave me a new beginning. I allowed myself to fully unravel and fall apart. I took a long hard look at the mess I was in. I knew this is the time I would finally clear out the junk and could organize what parts of me were salvageable. I began piecing myself back together with the pieces that made me, me. From there, I began to build a masterpiece from my brokenness. I grasped hold of patience, which allowed me to no longer be inconvenienced.I stopped being angry at life and that allowed me to grow softer and embrace the beauty I hadn’t seen before. I got to know, understand and grow intimate with the feelings that had been neglected underneath that thick layer of anger. I began to have peace and love within myself. My mind became my sound. I learned to be still and let the universe be my compass. Piece by piece I am still coming together and I fully am enjoying this part of my journey.
    I get to live out the beauty in exchange for my mother’s ashes. To honor that duality, I choose to live life today, tomorrow and all the rest of my days since my Mother couldn’t. For 35 years I struggled with my own mental health; My mothers struggle was an additional 24 years harder. I spent my whole life making sure I did everything opposite of her, so much so, I became all the good I am today because of Her!!!

    Thank you mom for paving the path so I could find my way out of the darkness and be the light for so many others. I seen you, I heard you, I understood you and I still love you today!

    Your daughter,
    Noble Storm Famous Warrior

    noble Storm Famous Warrior

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    • I am so incredibly sorry for your loss but what a beautiful way to pay tribute to your mom – to go and pursue and fight for your own happiness. This line is so powerful: “The ending of my mother’s story gave me a new beginning.” I am sure somewhere your mother is smiling down on you, seeing you live the life you have always deserved. Sending y…read more

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  • Your Will to Live

    Everything is happening at once yet nothing is happening at all the overwhelm feels like I’m drowning but I still stand tall regardless of the pain that I feel except someone once told me only love was actually real but why do I feel the anger and the sadness so deeply it feels like a part of me and inhibits me to see clearly why is the love i feel attachment why do my words not match my actions why do I confuse suffering for being noble why do I lack trust but continue to be hopeful for something that doesn’t exist because I’ve created someone even I can’t be safe with only to come to the realization that I’m the one who made this happen the exact way that it did to save myself in the end to learn that love is your greatest weapon to use or else it’s abuse to know it is to be it I became it so I could defeat it, just incase you needed a reason.

    -Your Will to Live

    Taylor L Giandomenico

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    • One day at a time. One positive moment at a time. Lean into the right kind of love. Lean into loving yourself. Sending you hugs. Thank you for sharing and thank you for being part of The Unsealed family. <3 Lauren

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  • ginnysg2 submitted a contest entry to Group logo of Write a poem or letter to the world about an experience that changed you or your life for the betterWrite a poem or letter to the world about an experience that changed you or your life for the better 1 years, 2 months ago

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    A Change Due to the Pandemic

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  • Salvation...

    October 17th 2006…
    Gave up on the old life-it just could not exist.

    I was using, drinking, abusing-Trying self to die
    But though I was overblown-was some thinking in mind.
    At the end of the night-substance and alcohol gone
    Came this thinking of life stinking-maybe I was wrong.

    Wait a minute here-I should be crumped,
    These gasoline fumes just may be dumb.
    Tomorrow, my only daughter…turns five-
    And I’m not wanting to be alive?

    How could one steal a life to others real?
    When this world came to life-was it a flip deal?
    Had not my best friend-escaped again,
    To the hospital room from my hole-sunk tomb?
    Emergency fair-I’ll wait…Have not my best friend there.

    Then like God spoke:
    Put the gas can down-may new life, have wrote…
    So, I went next days’ recovery-
    Burned out and bent; but God had reality!
    …And this could all be good?
    Wherefore means the little engine that could?

    Therefore I obeyed that very next day,
    And glory halleluiah-God had better/No, the best Way!!!
    And no-have not had there-street life goodbye
    Along with witchcraft involved in drugs…
    I was simply chasing the wrong place/wrong love.
    God, I thought You hated me-so I hated You too,
    I for all along had been deceived-I’ll not type what needs You.
    But thank You later for taking me, to the alter of grace…
    God, once again-You were on time, because You’re never late!!!

    8:41PM
    4/15/2024
    Monday

    Timothy T.

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    • Timothy! This is amazing. I am so glad you got the help you needed so you could be the person you truly are and the person you have always been. Thank you for sharing and thank you for being part of the Unsealed family. <3 Lauren

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      • Thank you so much Lauren, I am trying my best to actually care about myself. It’s not easy when I’ve hated both God and myself for 20some years-but like I say-I’m trying. This community of like-minded and understanding people has helped and continues to help me do that…Thank you all so much!!!

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  • My Destiny

    That moment I chose myself & my path of destiny
    The path that was made for me
    Was the happiest moment of my life

    I no longer carried the heaviness of oppression & my generational strife
    I no longer had to pretend I enjoyed being an ordinary housewife

    I ran towards my truth quicker than the wind could blow

    I could finally smile and exhale my ancestral whoas

    I chose to be the person only a seer could see
    I chose to stand tall & SING

    I AM no longer a blackbird, but a phoenix of almighty power
    I watched the clocks speed up by the hour

    As I flew into the unknown above their racist towers
    With a new perspective of self-love & dignity

    As I sat there resting, finally able to drink my tea
    And basque in the glory of who I could BE

    Embodying the path that was made for me

    Celebrating that I chose,
    My heavenly destiny

    Zi

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    • There is nothing that compares to following your heart and being exactly who you are without apologizing for it. Keep being who you are. Keep shining bright. You are a true north star. Thank you for sharing and thank you for being part of our Unsealed family. <3 Lauren

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  • vbutler13 submitted a contest entry to Group logo of Write a poem or letter to the world about an experience that changed you or your life for the betterWrite a poem or letter to the world about an experience that changed you or your life for the better 1 years, 2 months ago

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    DInSTANT Comfort

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  • I DON’t HAVE PTSD

    I DON’T HAVE PTSD
    [in Southernspeak]

    When I wake up in the mornin’
    most any day
    everything isn’t broken
    lying about in ashen heaps, the smell
    his buddies dead or dyin’
    one smokin’ wheel of the sideways chopper still turnin’.

    I can have
    an already-always appreciation
    of a new day. Most any mornin’
    rain, or sun peering at me
    there’s blue sky in between the clouds
    and the coffee is good.

    I don’t have to clean up empties
    or wipe up dog poo cause I didn’t let it out
    in time
    that time of not bein’ to forget, all encompassing.

    My good friend has it tho
    and it never fully leaves him
    the self recrimination either
    whar forgiveness ain’t
    nor the compassion jus’ be missin’
    he fight this time an’ next for the clear blue.

    My friend has seen mor’ o’ the dyin’
    than I will ever
    even after a career of hospital intensive care work
    where my role in it were to stop tha’ dying.
    His was to cause it, that ther’ black
    when we look each other in tha’ eye, we know.

    Ray Whitaker

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    • The way you can see your friend’s perspective and have so much empathy for him is so beautiful. You have such a kind and soft heart. Thank you for sharing and thank you for being part of The Unsealed family. <3 Lauren

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  • daley submitted a contest entry to Group logo of Write a poem or letter to the world about an experience that changed you or your life for the betterWrite a poem or letter to the world about an experience that changed you or your life for the better 1 years, 2 months ago

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    Edenish

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