Activity
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Kanani responded to a letter in topic Health, Wellness and Chronic Conditions 1 month ago
Well, it was a lot longer, but I hope that if someone else with this disease find it, they’ll relate to what I’ve written. It’s been a real honor to be able to help craft the messaging that’s on out on ListenToYourEyes on FB, as well as on their site. Thanks for your support.
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Kanani responded to a letter in topic Introductions, Icebreakers and Prompts 1 month ago
Hi Lauren, I love this site! It’s great to see long form writing in a time when writing has grown more condensed. I’m excited to read everyone’s thoughts, as we all get back to wordsmithing.
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Kanani responded to a letter in topic Remembering those we lost/Grief 1 month ago
FYI, I will see about making copies. I’d like to find out the status of her first born son, and see if I can get copies to him. I haven’t been successful reaching her mother yet. I know she had sisters, but I can’t remember their names. Anyway, I just wanted them all to know, I remember Shelley when she was full of the promise of life.
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Kanani responded to a letter in topic Remembering those we lost/Grief 1 month ago
And sorry for all the typos! I should probably write it elsewhere, run it through a wordcheck and then copy and paste it! Anyway, many thanks for your support and kind words!
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Kanani responded to a letter in topic Remembering those we lost/Grief 1 month ago
Hi Lauren, I was glad to find his letter here. I found it via a website that mentioned him and his mother. It’s been a gutwrenching week for me, finding out what happened to Shelley, and then the unfolding tragedy of her sons. I understand that their father is living with CTE, so the tragedy really was all-encompassing.
George III sounded like a…read more -
Kanani responded to a letter in topic Remembering those we lost/Grief 1 month ago
Hi, Yes, those are two pictures of Shelley (Michelle). One is when she’s probably around 12, which is when we met. The other was taken when she was around 15 or 16, and she was living in Los Angeles. I’d love to send these to her grand daughter. What a terribly painful loss this all was for her.
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FYI, I will see about making copies. I’d like to find out the status of her first born son, and see if I can get copies to him. I haven’t been successful reaching her mother yet. I know she had sisters, but I can’t remember their names. Anyway, I just wanted them all to know, I remember Shelley when she was full of the promise of life.
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I reached out to George’s daughter’s mom and told her about you. I will keep you posted. I don’t know her well but I had sent her my interview with George so she has it for her daughter whenever he is ready to listen. George and Josh loved their mom. From my understanding, the loss of their mom was the catalyst to Josh’s struggles in the latter…read more
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Kanani responded to a letter in topic Remembering those we lost/Grief 1 month ago
What a loving remembrance. What a great gift of empathy she left for you. Talking to others when they are down, an innate sense of when someone just needs a kind word. Such a gift. It’s your way of honoring her everyday.
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Thank you for those beautiful words. I live a lot through the lessons my Mother taught me. My empathetic ways are probably why I’ve chosen to stay here in this life. I came close to ending my own life a few years ago but it was her voice as clear as day on a chill July wind that led me here. Yesterday marked a somber day for my empathy, a good…read more
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Kanani responded to a letter in topic Remembering those we lost/Grief 1 month ago
Dear Jamie, I’m so sorry for your loss, but grateful that you remember that through her battle with cancer, she was not only courageous, but had a wonderful smile, sense of humor and a positive attitude. I am glad that you celebrate her life with this in mind. Going forward, it’s what we all should do. Thank you so much for sharing.
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Kanani, Thank you for taking time to read my letter and respond. I appreciate your kind words. All life events have value and for me it was important to share this with our community because if my story helps even one person by making them think then it’s totally worthy. Perspective is such a great tool to have. Thank you again!
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Kanani responded to a letter in topic Remembering those we lost/Grief 1 month ago
Condolences on the loss of your sister. Lupus is a terrible chronic disease, and I too have seen it both limit, then take the lives of those who have it. I wish you all the best as you remember her, and also with managing your own health concerns as well.
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Kanani responded to a letter in topic Remembering those we lost/Grief 1 month ago
So sorry for your loss. What a beautiful letter. I’m glad you all have that necklace to wear and feel closer. Best wishes in the days and months ahead.
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Kanani shared a letter in the
Health, Wellness and Chronic Conditions group 1 month agoLiving with Thyroid Eye Disease: Becoming an advocate
KananiI was a patient.
But it was only when I got a rare disease, that I learned to become an advocate, first for myself, and later, for others. For the past 10 years, I’ve lived with a rare disease: A whopper that is chronic and ongoing, even as the worst of it has passed.Many years ago, I was diagnosed with Graves’ Disease. My symptoms were cla…read more
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Wow! I am so sorry you went through all of that. But I am glad you are doing better. And I am glad you have become an advocate – not only advocating for yourself but paving the way for other people to get diagnosed quicker and receive better healthcare. You are a very strong person, and I hope you continue to feel well. And I love this live,…read more
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Well, it was a lot longer, but I hope that if someone else with this disease find it, they’ll relate to what I’ve written. It’s been a real honor to be able to help craft the messaging that’s on out on ListenToYourEyes on FB, as well as on their site. Thanks for your support.
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Wow. I’ve learned so much from reading your leather. I’m glad that you were able to become an advocate and let people understand the struggles and the hardships that you’ve Wow. I’ve learned so much from reading your leather. I’m glad that you were able to become an advocate and let people understand the struggles and the hardships that you’ve do…read more
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Kanani responded to a letter in topic Introductions, Icebreakers and Prompts 1 month, 1 week ago
Dear Hannah,
Hello. I’m new here too.
I just wanted to say how nice it is that you have this loving relationship with your sister. It sounds like the two of you support one another, and it must be nice to have a reliable touchstone like her. Also, congratulations on finishing your Master’s degree and getting the job of your dreams!Your story of…read more
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Kanani shared a letter in the
Introductions, Icebreakers and Prompts group 1 month, 1 week agoThis post is viewable by the Unsealed community only.
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Kanani shared a letter in the
Remembering those we lost/Grief group 1 month, 1 week agoI called her Shelley
Kanani Fong, her friendThis is a letter for three persons, who are all deceased. One was a friend. The other two would have been friends, of this I am certain.
Recently, I went through some boxes, packed away by my mother over 30 years ago. I’d moved away by then, the things in my bedroom becoming relics of a time that I was in a hurry to discard as I hurtled into…read more
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OMG, thank you for writing this. George was my friend. He loved his mom. I didn’t notice the picture when I clicked, and didn’t realize until the end Shelley was George’s mom. George had a daughter. She is probably about six or seven now. i am sure she would love to know about her grandmother at some point. Shelley sounds like she was a beautiful…read more
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Hi Lauren, I was glad to find his letter here. I found it via a website that mentioned him and his mother. It’s been a gutwrenching week for me, finding out what happened to Shelley, and then the unfolding tragedy of her sons. I understand that their father is living with CTE, so the tragedy really was all-encompassing.
George III sounded like a…read more-
And sorry for all the typos! I should probably write it elsewhere, run it through a wordcheck and then copy and paste it! Anyway, many thanks for your support and kind words!
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@kanani are those both pictures of Michelle? The smaller once looks EXACTLY like George. They are identical. George’s daughter also looks just like Georige. I have his daughter’s mother’s contact information somewhere. I am sure she’d love to have this one day.
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Hi, Yes, those are two pictures of Shelley (Michelle). One is when she’s probably around 12, which is when we met. The other was taken when she was around 15 or 16, and she was living in Los Angeles. I’d love to send these to her grand daughter. What a terribly painful loss this all was for her.
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FYI, I will see about making copies. I’d like to find out the status of her first born son, and see if I can get copies to him. I haven’t been successful reaching her mother yet. I know she had sisters, but I can’t remember their names. Anyway, I just wanted them all to know, I remember Shelley when she was full of the promise of life.
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I reached out to George’s daughter’s mom and told her about you. I will keep you posted. I don’t know her well but I had sent her my interview with George so she has it for her daughter whenever he is ready to listen. George and Josh loved their mom. From my understanding, the loss of their mom was the catalyst to Josh’s struggles in the latter…read more
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I’m so sorry that you had to lose so much beautiful people. By the way you talk about them makes me want to to meet them as well. I’m glad that you shared your story. You’re so brave because I know that stories like this can open wounds or create a memory.
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Aww thank you so much. I spoke to both Shelley’s sister and George’s wife. What is the best way to pass along their contact info? Shelley’s sister is very much looking forward to hearing from you. <33 Lauren
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