I was a patient.
But it was only when I got a rare disease, that I learned to become an advocate, first for myself, and later, for others. For the past 10 years, I’ve lived with a rare disease: A whopper that is chronic and ongoing, even as the worst of it has passed.

Many years ago, I was diagnosed with Graves’ Disease. My symptoms were cla…read more

Dear Unsealers,
I feel like I’ve joined some super secret society, where there might be a secret handshake, maybe a secret panel to lean on that will reveal a hidden room. If that’s not the case, forgive me, but it feels like this is a place to unseal a lot of the truths we hold back about how we see the world, and how we’ve functioned in it…read more

This is a letter for three persons, who are all deceased. One was a friend. The other two would have been friends, of this I am certain.

Recently, I went through some boxes, packed away by my mother over 30 years ago. I’d moved away by then, the things in my bedroom becoming relics of a time that I was in a hurry to discard as I hurtled into…read more