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Shay Vogler shared a letter in the
Health, Wellness and Chronic Conditions group 7 months, 3 weeks ago
Life As A Spoonie
Dearest Readers,
When was the last time you were told “this is what’s wrong with you” and you believed it? For me? I have yet to believe what doctors tell me. Ever since I can remember it has always been “Oh, this is what is wrong.” or “you’ve been walking on a broken ankle for a week.” I am almost always misdiagnosed or told “it’s nothing. Don’t worry about it.” I was born 3 months early with a hole in my heart, a heart murmur and severe lung issues. 3 months later, I contract viral meningitis and the child abuse begins shortly after. I was adopted and raised on a farm, but oractically lived in hospitals and doctor offices. I have 4 different types of migraines that took several years to diagnose because “You don’t have the typical symptoms so it can’t be that.” I was misdiagnosed with POTS disease when in fact, it is a congenital heart defect. I also have brittle bones, an undiagnosed hypermobility disorder, osteoarthritis, Hashimoto’s disease, healed skull fractures from the child abuse, scarring on my brain from the meningitis and a benign brain tumor that no doctor will touch because “it is in a vital area, but it’s not causing any symptoms.”
The moral of this story is, do not ever accept a diagnosis first thing. If your gut is telling you “something is wrong.” please get a second, third and fourth opinoion. It may just save your life!Subscribe  or  log in to reply
Shay, I am so sorry you have been through so much. But you are right; trust your intuition and keep asking questions and going elsewhere if something does not feel right. Thank you for sharing and thank you for being part of The Unsealed. <3 Lauren
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