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ashleyg9393 shared a letter in the
Health, Wellness and Chronic Conditions group 5 months, 1 weeks ago
My Affliction of the Zzzz
I’m living in a body that does not have the capability to stay awake.
I’m held captive trying to get through each day, knowing I could shut down at any moment.
My eyes are heavy.
My head pulsates.
I disengage before I even give consent.I’m so tired all the time.
I need a nap after basic things.
Shower. Nap.
Cook. Nap.
Eat. Nap.The yawning is uncontrollable and a clear indicator.
I wonder if i could get assistance but don’t want others to view me as lazy or taking the easy way out.
Is my disability valid enough?
Will sympathy be shown for this unconventional disorder?
It’s hard to relate to anyone.
People often tell me we are all tired.
But I know that not everyone contemplates sleeping in a bathroom stall at work daily.
I know others could get a good nights rest and a boost from their favorite cup of coffee.
I know others don’t go to war with themselves about walking out just to go home and rest .. leaving my family financially unstable and confused.As I write this, my eyes feel heavy.
They burn a little.
My head and neck give out occasionally.
I’m uncomfortable yet again.
And I don’t see any resolution in sight.
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Ashley, I just wanted to say my heart is with you and your feelings are always valid. Reading your story made me reflect back to me always falling asleep in class, or even now I’ll doze off in a zoom meeting at times! You are not alone and there is someone out there who understands your battle, and is willing to help. Continue to be strong through your journey and be gentle with yourself. We are all battling with things that people may not understand.
-Cierra
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Thank you so so so much! I’m happy to be heard. And I’m sorry you also have to deal with this. I think back to high school and I’d always get in trouble for sleeping. Can’t wait for my upcoming appt. I hope I move towards some answers. Thanks so much for giving me a virtual hug 🫶🏽 I’m rooting for us !
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